Cerebral Palsy Is Not A Disease. . .

The other day one of my PAs referred to Cerebral Palsy(CP) as a disease while my sister was present. they received a mini lecture from her. I think it is worth repeating that speech since I hear people call my disability a disease more often than I like.

Cerebral Palsy is not a disease, it is a brain injury. Therefore, people cannot catch CP from me. I received my brain injury while I was being born. Children up to age Three can injure their brains through many accidents, and doctors will call the brain injury CP.   However, if someone older then three  injures their brain,  it is simply referred to as a brain injury.  l believe by age three, the brain is totally knitted together  so that it is apparent that a brain injury has occurred.  to cause the shift in the diagnoses.

Just to be super clear, in my life, nobody has come up to me and accused me of  giving them CP.   Did I just hear a collective sigh?

CP is not said to be hereditary.  However, I did have a cousin who had CP.  My moms brothers son.  In my cousins case, he was too big to be born the normal way, and C-sections were not invented yet.  so  like me his brain  injury happened while being born.  Nine years later, I was born on his birthday. isn’t that weird or what?

It is said that no two people with CP has the same exact disabilities and abilities.  Take my cousin and I for instance.  David was stiff like a board and totally locked in his body.  His only means of communication were his  eyes and some facial cues.  We all knew he was smart because he  laughed at the right times and grew serious when it was appropriate.  My aunt was a great role  model, she talked to David like he was totally normal, and everyone followed her lead. When I came along my family treated me just the same. I owe my aunt and cousin a multitude of thanks for paving the way for me!